| June 05, 2018
Supporting Big Freeze 4 to help cure MND
The Coalition Government will support Australians getting access to life-saving clinical trials and help find a cure for Motor Neurone Disease (MND).
As part of Neale Daniher’s ‘The Big Freeze 4’ fundraising event at the MCG, the Coalition Government will match donations, dollar-for-dollar, up to $2 million to invest in new clinical trials for Australians suffering from MND.
“Last week Members of Federal Parliament rallied around the cause and donned a Big Freeze 4 beanie to support the charity,” Mr Drum said.
“Neale Daniher is one of more than 2,000 Australians who are suffering from MND. In Australia, two people are diagnosed with MND and two people die because of MND every day. I urge everyone to dig deep and help fund critical research for MND through clinical trials.
MND is a condition where the nerve cells controlling the muscles that allow people to move, speak, swallow and breathe fail to work normally. The nerve cells eventually die and leave the muscles to gradually weaken and waste.
The funds raised will support Neale Daniher’s charity FightMND to continue critical research and expand clinical trial efforts to test the effectiveness and safety of drugs, like Tecfidera, as an option for those suffering with MND.
The Tecfidera trial, which began in April this year and will run until January 2019, involves 150 patients from across six sites making it the biggest MND trial ever conducted in Australia.
Mr Drum, whom is championing the FightMND cause said, “Neale is a good friend of mine and it is great see every AFL coach support the charity by going down the slide this weekend.
The Federal Government funds for the Big Freeze 4 builds on $2 million provided to the campaign in 2017. In addition research grants awarded by the National Health and Medical Research Council for MND totalled $21.7 million since 2015, including a further $4.6 million alone in 2017.
For more information or to donate, please visit: www.fightmnd.org.au